(Crane -- ee--oh--sin--oh---stow--sis)
There are 24 hours in a day= 9000 babies born hourly
In a 24 hour period 108 babies could be born with Craniosynostosis= approximately 5 babies born hourly with craniosynostosis
In a normal infant who is not affected by Craniosynostosis these sutures remain open throughout the first two years of life to allow proper brain growth. As 80% of the brain growth occurs rapidly in the first 18 months of life.
- Learning delays can result from intracranial pressure(ICP) i
- Eyesight problems
- Hearing delays,
- Mouth, speech, and feeding issues
- Hydrocephalous(an abnormal collection of fluid on the brain which can lead to pressure if untreated.)
- SeizuresChiari Malformation
- Profound psychological effects in childhood and through adulthood due to looking different
- Death(rare but in cases of severe ICP it is a possibility)
An appointment with an Experienced Craniofacial Specialist needs to be made. More than likely CT Scans & MRIs need to be ordered. However, as more is becoming understood about Craniosynostosis some Craniofacial specialist can tell upon physical assessment if your child's condition is in fact craniosynostosis.
"Wait MRIs? CT scans? I discussed my concerns with my child's physician and they want to send for an x-ray."
Although X-rays will show if sutures are present they will not show the suture in enough clarity to catch if fusion has begun or not. Only a craniofacial specialist should be allowed to diagnose or dismiss craniosynostosis.
Some mild cases of craniosynostosis are monitored and may never need surgery. However, Craniosynostosis is a progressive deformity(which means the awkward head shape will only get worse as the suture continues to fuse and the brain continues to grow.)
Surgery on your child is a very scary concept but, honestly, these children bounce back fast. Some children only need one initial surgery while other children could require more. It all depends on the severity of the suture fusion and how your child grows.