Okay its a bit late but I want to take a minute to say Happy Mother's Day to all of you mommas out there who really deserve pampering daily. To avoid any hurt feelings I will say that all mother's work hard but there is a special mom who sometimes dedicates her whole life to her child. She may not have ever chosen the hard work that she's subjected to but as a mom she will often power through any challenge set before here. These mommas who have children with medical needs, of any sort, (craniofacial, growth & learning delays, autism, asthma, neuro-tube defects, handicapped, cancer...ect..ect), would be Gold Medal holders if parenting were the olympics. They are the prayer warriors and the women that I trust to gather around when I'm having a tough day. Sure we have our spats, squables, mostly brought on by culture, religious, or personality difference, but we have a common bond that draws us back together in some of the toughest times. I am proud to call my craniofacial friends my family. Many of these mommas I've never met, I most likely will never meet a lot of them. However, we really get eachother on such a deep level that it was certainly written in the stars for us to be destined to come together one way or another. Its such a deep and unique bond that we can cry, laugh, and scream together...sometimes all within 5 minutes of last emotion. There is something special about being a woman brought together by a common challenge, and although in the toughest times its hard to find the silver lining the fact that I found a lot of my friends through support groups and Facebook seems to be the brightest lining of all. I know I'm never alone and I hope that my blog, my website(beyondaglimpse.com) and my videos help bring other mom's to our network. Please take a moment to meet some(not all) of my extended family in the video I'm posting and please share this blog as I plan to get things rolling to get information out there for more awareness of not just craniosynostosis but other craniofacial abnormalities that are a challenge on a whole family when their child is born with or develops one of the many conditions of the skull or face.
Again Happy ~LATE~ Mother's Day to all you that have one of the toughest jobs on this planet.
Tuesday, May 17, 2011
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